So I have to back peddle a little bit to explain a few things. I won't go into to much terrible detail about all of it but there is a bit of a time line.
When I was 21 they found out I had HPV and because of an unfortunate pap I had a few years earlier I was terrified of seeing the OB/Gyn (the speculum wasn't put in properly, causing it to slip, it was extremely painful) of course after the painful testing they found out I was pre-cancer, meaning I had climbed up all the stages of severity in HPV and was near screwed. Thanks to some awesome doctors and people who know how to work the system I got my surgery with no insurance and with assistance most of it was paid off by the state, the rest I had some help with. This was my first surgery, a LEEP Cone Biopsy, it was painful and the recovery was a year long with constant tests to make sure they got it all. Because of this surgery I have a very sensitive uterus (I know you were dying to know that) and all tests since then that touched my cervix have been a lot more painful then they should be.
That was before I met my wonderful loving husband.
After I met my loving husband it seemed my body would test him. I started having tremendous pain with my cycle, now believed to be endometriosis and I have 3 out of the 4 pain symptoms, I had a lot of people who didn't believe me because it causes me near constant pain. The naive response most people give me is that it can't be endometriosis due to the fact that my pain exceeded the limits of my hormones and cycle where my pain should be, not to mention that my condition didn't want to respond the way they wanted it to when I was given medication. Because of this I was made to go through painful and expensive tests that I had to pay for to prove that I wasn't wrong or lying about my pain.
During these tests they did not find a sign of endometriosis because it cannot be seen in any test outside of surgery. I did learn to fear the words 'But We' ...... We didn't find the cause of the pain But We found... well first they found gallstones, then they figured I had Fibromyalgia and that medication changed me in many ways. During a scope they found GERD and a hiatal hernia that medication doesn't bother me so much unless I don't take it then its impossible to do anything. During this time period I developed sever migraines and I don't like that medication either. Another exam lead to finding a benign granuloma on my liver, I have to have an MRI every 6 months to ensure that it doesn't grow in size, if it does then that requires surgery. Liver surgery is a pretty sensitive issue and that doctor (you don't want to know how many doctors I have at this point) does not want to do that unless it is absolutely necessary. This is all within a five year period of time and during all this time every time I had my cycle I was unbearable pain and not during my cycle I had moments of unbearable pain.
My poor husband has spent more time taking care of me then not for the majority of our relationship. At this point we are going on 8 years and he has been caring for me, taking me to doctors, tests and emergency rooms for more then half our relationship. Not to mention seeing the pain, the reaction to medications and frustration at not finding an answer. When we finally went to see a reproductive endocrinologist who looked at me and all of my symptoms and said 'You have Endometriosis' which is the one thing we didn't hear in all of the years because they couldn't confirm and the couldn't confirm without surgery and they didn't want to do surgery because they felt it unnecessary which drove us insane. So I sat down and my first meeting with this doctor he says, sure I diagnose you, ever doctor since has accepted it. He wants us to get pregnant because surgery will cause scar tissue. Scar tissue will make pregnancy harder and pregnancy might wipe the reproductive slate clean so to speak.
My husband and I haven't been protected since we got married, we figured it would happen if it happened (I also couldn't be on the pill due to the granuloma) so he wanted to find out why I wasn't pregnant already. So the very expensive tests started and with it came stress. We finally stopped seeing him because we couldn't afford it anymore and the stress was killing me. Not long after that decision we got pregnant and that brings us back to the first post of this blog.
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